What is it really like? If you think about it, nobody knows. We all live in our own reality.
P.L.E.A.S.E. - This is the "skill" we learned about in DBT today. Unfortunately it's not an acronym, though DBT likes to make everything look like an acronym. At any rate, this was probably pretty applicable to my situation.
The P.L. stands for "Treat Physical Illness" (see what I mean about the acronym thing?). It's the first thing listed, so does that mean it's most important? No, I don't think so. I think it's the one that Marsha Linehan could fit into P.L. Either way, I struggle here... Lots of us do. I don't have a lot of faith in modern medicine providing any relief for my physical ailments. My physical challenges are primarily auto-immune, and thus seem to create question marks for doctors rather than inspiring treatment plans that are actually effective.
I have partially (or maybe fully) given up on trying to get treatment, partially because I don't even seem to be able to get a proper diagnoses, not that having a real name for anything makes it any more likely you can treat it, but it feels like a start. I've had multiple biopsies, and each has given a different direction in diagnosis path. How can one test say one thing, and another test say another? That's what happens though, and so I have a list a half page long of disorders, syndromes, and diseases that I supposedly have. Add a couple of psychiatric diagnoses to the list of physical and you come up with a real mess. Basically, my body has been physically manifesting my mind's conditions for years. It's no wonder there isn't a treatment that works. I can't get my mind in order.